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6-Year-Old With Disease So Rare It’s Named After Him Baffles Doctors By Surviving 36 Surgeries

by Amy Paige
Amy is the Director of Trending Content at LittleThings. After graduating from Florida State University with a creative writing degree, she moved straight to New York City to pursue a career in the arts. She loves discovering and sharing viral videos, watching movies with her Muppet-like poodle mix named Cali, and doing the robot whenever possible.

Grayson Kole Smith was born on February 15, 2013. His parents, Jenny and Kendyl, had two healthy children before his arrival, and Jenny’s pregnancy with Grayson went just as smoothly.

But Grayson was born with a slew of serious and mysterious medical issues that no one predicted. He was barely breathing. He was blind and deaf. His eyes were swollen shut, and he was missing a chunk of his skull. He had a hole in his heart, a curve in his spine, and severe facial deformations.

Doctors were completely stumped. They couldn’t figure out the root cause of Grayson’s condition, and no amount of genetic testing or DNA results seemed to provide the answers.

The medical community has concluded that Grayson is the only person in the world to be born with his disease, which is why it has been named after him: Grayson’s syndrome.

Doctors quickly placed the little boy into hospice care and told Jenny and Kendyl to prepare for the worst. They even started the gut-wrenching process of arranging funeral plans.

Then a year passed by … and another … and another. Grayson has so far survived a whopping 36 surgeries, and, at the age of 6, he continues to defy all medical odds.

Watch the video below to meet this incredible young boy whom his mother describes as a “ray of light and is always smiling, no matter how much pain he might be in.”

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