LIFE

12-Year-Old With Rare Form Of Dwarfism Defies All Medical Odds

by Angel Chang
Angel is a writer on the Original Content team at LittleThings. Check out her articles about crucial tips on female and doggie health. She loves to take long walks, volunteer with kids, try new food, browse through burger recipes, and code in her spare time. Feel free to let her know what you'd like to see her write up next.

Most of us were born healthy and without severe complications or medical conditions. This, to me, is the greatest blessing that anyone can have.

Not everyone is as fortunate, however. A handful of children in the world are born with extremely rare, very unique physical conditions — but that does not mean they are disheartened by life.

On the contrary, these children often have the biggest smiles and the most loving hearts — like these beautiful children born with Down Syndrome.

And 12-year-old Kenadie Jourdin-Bromley, from Ontario, Canada, is the perfect example of one of these smiling, loving hearts.

Born with a rare form of primordial dwarfism, which affects only about 100 people in the world, Kenadie has defied all odds and has grown into an energetic, enthusiastic teenager.

In an interview with Barcroft TV, her mother, Brianne, tells us of Kenadie’s fantastic personality, and touching ability to empathize with anyone and anything.

Scroll further to read more about Kenadie’s story, and to see how she has overcome her challenges. Let us know what you think in the comments below!

Kenadie Jourdin-Bromley is just like any other 12-year-old girl. She goes to school, likes to play sports, and loves to draw. The only thing that’s different about her is that she stands just over three feet tall.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

Kenadie was diagnosed with an unbelievably rare form of primordial dwarfism when she was just 8 months old, and she currently weighs the same as a 2-year-old would.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

The condition is so rare that it affects around only 100 people in the entire world.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

Currently, there are no effective treatments for primordial dwarfism. The primary characteristics of this condition include delayed mental development and frequent illness.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

Other more severe physical issues include respiratory and eating problems.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

Patients with primordial dwarfism do not respond to hormone therapy, since it isn't caused by a lack of any kind of hormonal balance.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

Weighing just 2.5 lbs. at birth, she was so tiny that nurses in the hospital nicknamed her 'Thumbelina.'

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

Doctors told her mother, Brianne, that she would live only for a few days.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

Thinking that she would suffer from severe brain damage and not survive at all, Kenadie’s parents took her to be baptized the very same day she was born.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

“We baptized her right away because we were told that we should just bring her home to die,” said Brianne in an interview with Barcroft TV.

“We baptized her right away because we were told that we should just bring her home to die,” said Brianne in an interview with Barcroft TV.
BARCROFT USA/Barcroft Media/Landov

“It was like mourning — the idea of all the life that you imagined for your child has suddenly been taken away.”

“It was like mourning — the idea of all the life that you imagined for your child has suddenly been taken away.”
BARCROFT USA/Barcroft Media/Landov

But little Kenadie, despite all medical odds, survived her infancy.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

And now, 12 years later, Kenadie is doing exceptionally well.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

Despite having underdeveloped limbs, learning difficulties, and fragile bones, Kenadie has defied the odds and the doctor’s predictions. She loves playing hockey, ice-skating, going to school, and swimming.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

“She’s kind-hearted, she is loving, and wants to share everything with everyone. She is feisty, determined, and independent,” said Brianne.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

Brianne always feels an overwhelming sense of joy when she sees her daughter learn something new, or accomplish a new feat.

Brianne always feels an overwhelming sense of joy when she sees her daughter learn something new, or accomplish a new feat.
BARCROFT USA/Barcroft Media/Landov

Even though her 10-year-old little brother, Tyran, stands much taller than she does, Kenadie is undaunted.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

It will continue to be a learning experience for the family, as they prepare to face medical issues that Kenadie may have in the future.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

“Having Kenadie definitely tested my faith many times — watching her struggle isn’t easy,” said Brianne.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

“My hope for the future for Kenadie is just that she is happy, and that she finds things that make her happy and make her smile,” said Brianne.

Young girl with primordial dwarfism
BARCROFT USA/Barcroft Media/Landov

Were you inspired by young Kenadie’s story, and were you as moved by her incredible spirit as I was?

Please SHARE if you think more people should know about this medical condition!