Little Carter Sarkar runs around the yard, always eager to play. He’s just like any other 4-year-old boy, only he has fatal Sanfilippo Syndrome. It is a disease similar to Alzheimer’s, but for children.
Because of his condition, Carter is losing his memory. Unfortunately, doctors have told his parents that the disease will cause him to lose his ability to walk, play, and even move. They informed his parents, Samir an Jennifer Sarkar, that in most cases, children with Sanfilippo Syndrome become wheel-chair bound and pass away in their teens.
Despite the staggering negativity surrounding the degenerative disease, Carter and his family are bravely facing his situation head on.
“We were so blessed to have him as our son, you know. I remember when Carter was born, counting his fingers and counting his toes and thinking everything was going to be okay,” a prideful Samir recalls.
“It’s exhausting, but as a parent, you’ll do anything for your child,” Jennifer explains.
They want him to experience everything that he possibly can while he is still here with them and his older sister.
The optimistic family is finding new hope through a new gene trial that could provide answers and possibly a cure.
In addition, they want to bring awareness as well as money to the pursuit of a cure for Sanfilippo Syndrome. Jennifer and Samir are working hard to spread the word of Carter’s Challenge. In order to do that, the loving parents have created a game to raise awareness about Sanfilippo Syndrome. During the game, 2 people play Rock, Paper, Scissors. Then, the winner splashes the loser with water and the loser donates $10 to the Cure Sanfilippo Syndrome Foundation. They hope the game goes viral and brings more attention to the disease while laying down the foundation to help other children.
Please SHARE this family’s transformation from heartbreak to hope if you believe that little gestures can make a big difference!
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