Though they are tiny in size and oh-so delicate, babies born with life-altering birth conditions are incredibly brave and strong.
Some are born blue because of their umbilical cords — brought into the world with rare disorders, or born prematurely like poor little Marlo was — so they have to fight to be able to see their first months of life.
This was the case for little baby Paisley, who was born with a rare condition called Beckwith Wiedemann syndrome.
This caused her baby-sized tongue to grow immensely until it was twice the size of her mouth.
She couldn’t eat and could barely breath on her own because of her crowded throat — she couldn’t even smile.
Fortunately, she was able to get two reductive surgeries that allowed her to have a normal-sized tongue and a much easier life.
Check below to learn more about her first months in the world with her big tongue.
[H/T: Daily Mail]
Paisley Morrison-Johnson was born with Beckwith Wiedemann syndrome, which only affects one in every 14,000 babies born worldwide.
This can potentially cause a larger than average birth weight, abnormal body growth, and a higher risk for cancerous tumors in children.
But the rare condition caused this particular baby’s tongue to grow and grow, until it was twice the size of her little mouth, making it one of the biggest tongues doctors had ever seen.
“Her tongue filled up her whole mouth, it was very thick and protruding out of her mouth,” explained her mom, Madison Kienow, to Daily Mail.
Doctors were worried that it would cause her to suffocate, so they put her in a ventilator for her first three days.
Fortunately, she was breathing on her own by the end of the week, despite the big baby tongue.
Kienow and Paisley’s father, Shannon Morrison-Johnson, were also unable to bottle feed her because it wouldn’t fit in her mouth.
So she had to be fed with a gastronomy tube, making the milk go directly into her stomach.
She also was constantly chewing on her tongue, and was subject to many stares and questions by strangers.
So at six months, Paisley had her first reduction surgery to remove almost two inches off of her tongue.
First the middle of the muscle was cut, then little portions of each side were removed.
But her tongue seemed to grow back to its same size, despite the surgery, so they tried again four months later.
During the second attempt, an even bigger portion of her tongue was removed.
Thankfully, it seems to have stayed a normal size since she has recovered.
And since her tongue is not crowding her mouth, she has been able to smile, eat, and act like any other baby!
“I couldn’t believe it and was shocked by how beautiful my little girl looked,” beamed Kienow.
Since the surgery, Paisley looks completely different, and seems so excited and smiley.
And while the tongue-swelling effects of BWS can lead to speech troubles, Kienow says that she is now taking steps towards saying her first words.
“She couldn’t even make the sounds to say words like ‘mama’ and ‘dada’ before because of the size of her tongue, so this feels like a massive achievement,” she explained.
Though she may need speech therapy when she is older, the beaming baby seems to be catching up to what she previously couldn’t do with her large tongue.
Thanks to two life changing surgeries and her loving family, there’s nothing holding back the sweet baby now!
Check the video below to learn more about Paisley and her rare condition.
If you think the all babies are precious, make sure to SHARE with friends and family on Facebook!
Due to restrictions, this video cannot
be viewed in your region.