Carol and Fred Kurpiel adopted Ashley when she was just 9 weeks old. The new parents were very excited to bring their already beloved and healthy daughter back to their home in Peachtree City, Georgia.
When Ashley was 2-and-a-half, doctors diagnosed her with cancer after spotting a lump on her back. When they went to remove it, they realized it had spread. They amputated her right arm as a result.
The Kurpiel family thought their nightmare was over, but five months later, doctors called with horrible news: Not only did they misdiagnose Ashley with cancer, but they also realized she had an extremely rare disease that affects one in 2 million people, or one of an estimated 700 people worldwide.
It’s a disease that is slowly but surely turning Ashley’s muscles, tendons and ligaments into bone!
Carol and Fred were absolutely horrified to hear that their daughter was growing what they called a “second skeleton,” transforming her into a “human statue.”
Despite the fact that doctors said Ashley would only have a handful of years to live, more than 30 years have now passed — and wait until you see Ashley today.
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